National programme for rare diseases 2024-2028
Wedenoja, Satu (2024)
Wedenoja, Satu
Finnish Institute for Health and Welfare THL
2024
Julkaisun pysyvä osoite on
https://urn.fi/URN:ISBN:978-952-408-251-8
Svenska
Directions = Ohjaus : 2024_003
https://urn.fi/URN:ISBN:978-952-408-251-8
Julkaisun muut kieliversiot:
SuomeksiSvenska
Directions = Ohjaus : 2024_003
Tiivistelmä
The present third national programme for rare diseases complements the previous programmes. In the next five-year period, the focus will be on developing registers and the data base, strengthening structures, creating treatment- and service paths, ensuring the availability of medicines and treatment, securing research conditions and ensuring patient participation.
Kokoelmat
- Kirjat [4303]